Meet The Team

Professor K.E. Lewis

Keir Lewis is our Chairperson. He is a Professor in Swansea University and a Respiratory Consultant in Prince Philip Hospital, Hywel Dda Health Board. He sits on the Wales Rare Disease Implementation Group and in his spare time likes to use his lungs to play the saxophone and cheer the Scarlets!

Joe Annandale

Joe Annandale is our Treasurer. He is a Respiratory Nurse Specialist in Hywel Dda University Health Board and is currently working hard to complete a PhD. In his very limited spare time, he enjoys spending time with his family and running.

Kyle Jenkins

Kyle Jenkins is our Webmaster & site administrator. Kyle completed his BSc Undergraduate in Applied Computing in June 2018 at the University of Wales Trinity St. David and most recently completed his Postgraduate diploma in Advanced Software Technology in September 2020 at Swansea University. Kyle is an avid football fan and is a member of the Red Wall (Welsh football’s supporter club), he loves nothing more than supporting Wales at matches when they play at the Cardiff City Stadium. He is also a passionate fan of Liverpool Football Club. 
Gary's Story

Gary Stone


Lesley Dale

Lesley retired in February 2022, and after working in banking and car insurance since leaving school. Originally from Essex, she moved to Wales in 1988. She loves to travel, and along with Ray, have had some amazing holidays and fly drive trips to the USA, Canada and Italy. She also enjoys gardening. Together with Ray, they have organised 2 curry and quiz nights for the WORLD charity. Although they have been together for 26 years, they finally tied the knot in August 2022.

Ray Dale

Ray become a patient of Prof Lewis in October 2007, when he was diagnosed with Wengers Granulomatosis, which affected his lungs. He had to give up work because of this, but has become involved in volunteering for Age Cymru, and more recently with a local food bank. His passion is supporting Arsenal Football Club, and he also enjoys watching motor sports and live music. He is also a great cook and loves sampling IPA beers.   

Sylvia Evans

Sylvia Evans is one of our trustees. A retired nurse, Sylvia has a rare muscle illness and continues to use her skills through her voluntary work. Spending time with family and friends is priority for Sylvia and her interests include rugby (having been to the last 3 World Cups!), bird-watching, musicals and cooking.

Graham Evans

Graham Evans is one of our trustees and Sylvia’s husband. He took early retirement from the Civil Service in 2012 to become a Carer for Sylvia; a role which is ongoing. Like Sylvia, Graham enjoys spending time with family and friends and his other interests include rugby, bird-watching, gardening and model railways.

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