News

17th January 2022
Donations in memory of Sheila Elaine Thomas

We would like to acknowledge the kind donations from the friends and family of Sheila Elaine Thomas, who was a true stalwart of the respiratory unit at Prince Philip Hospital. We would like to thank Amanda Thomas (Sheila's daughter) all the way from Canada, Mr and Mrs E. A. Evans, A. T. and J.E. Purdy, […]

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10th January 2022
Sharon Geggus Fantastic Fundraising

Many congratulations to Sharon Geggus, one of our members who had severe COVID last November. Sharon has just swam 84 lengths of Llanelli Leisure pool (one for each day in hospital!) to raise money for a memorial sculpture. She has already raised £2,850 of her £3,000 target. Well done Sharon, WORLD are all very proud […]

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18th October 2021
Holidays and days out resource

Our Trustee Sylvia Evans has created this wonderful resource on holidays, days out and useful links to websites she recommends.

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18th October 2021
Virtual Coffee Morning 2nd Nov 10-11.30am

To register, please email us at joinusatworld@outlook.com

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15th June 2021
National Men's Health Week 14 - 20th June 2021- MEN2MEN
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12th May 2021
Genomics Showcase Friday 14th May 2021

Join us at the virtual All Wales Genomics Showcase on Friday 14th May 10am - 7pm. Keir Lewis will be speaking about COVID, and one of our members Marie James will be sharing her experience as a Rare Disease Advocate. We will also have trustees and members Sylvia and Graham Evans hosting a stand. You […]

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12th February 2021
Donation from Arumba Llan

A very big thank you to everyone at Arumba Llan Fitness Class and Charity for their generous donation of £2,500 to WORLD! Trustees Keir, Joe and Rachel were very pleased to receive this cheque on behalf of the charity, from Nia Gibbs and Teresa Owens, in a socially distanced presentation earlier this week. We are […]

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3rd September 2020
WORLD General Knowledge Quiz

WORLD Summer Quiz   - Answers will be posted shortly, good luck....                       1. Who has won most grand slams in tennis; Serena Williams or Roger Federer? 2. In July what is the name given to the full moon?    _  _  _  _        _  _  _  _ 3.  At 1.34 miles, where is the longest pleasure pier in […]

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21st August 2020
WORLD Virtual forum 4th September

As we can't get together in person to meet for the regular WORLD forum at the moment, we have decided to hold a virtual forum online for all our friends and supporters. This will take place at 10.30 am on Friday 4th of September and will be hosted on Microsoft Teams. If you would like […]

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20th August 2020
Prof Lewis talks to BBC Politics Wales about when he met his first patient with Covid....
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26th February 2020
WORLD forum 10th March

Please join us at Parc y Scarlets for our next event, our bi-annual patient and carer forum on Tuesday 10th March 2020. Our speakers include Joseph Carter from the British Lung Foundation and Dr Mark Briggs from the Welsh Blood Service. To register please email us at joinusatworld@outlook.com or visit us on Facebook www.facebook.com/WalesRare

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14th June 2019
Fundraising for WORLD

WORLD is looking for volunteers to help plan and run fundraising events and activities for the charity. Whether you have the time to join the fundraising committee, have a great fundraising idea or can offer some time to help with an event, we would love to hear from you. Please email us at joinusatworld@outlook.com or message us via Facebook. […]

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14th June 2019
WORLD'S 26.2 mile challenge

In April 2019, WORLD trustees Rachel (and bump), Sarah, Joe and Keir, took on a 26.2 mile challenge, promising to run, cycle or swim the distance of a marathon, to raise money for WORLD. The event culminated in Sarah running Hamburg marathon (all in one go!) on 28 April in a time of 4.34.24! Thanks to your […]

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14th June 2019
WORLD forum 22 Jan 19

WORLD held a follow-up members event in January 2019, where we introduced our new trustees, Sylvia and Graham Evans and were delighted to receive a cheque donation of £1440 from Bethan Davies, raised in memory of her late sister Awen. Thanks to all speakers and attendees for their contributions and support in making the event a […]

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14th June 2019
Santander Foundation Grant

WORLD is delighted to have the support of the Santander Foundation and in particular, we would like to thank Mr Leighton Phillips and Mr David Price at Santander Llanelli branch who applied via their staff-matched funding scheme for £1000 following our successful launch event, hosted by Mr Phil Bennett OBE at Parc y Scarlets last […]

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14th June 2019
Co-operative Local Community Fund

WORLD has been nominated and chosen to benefit from the Co-op's Local Community Fund. Did you know that if you have a Co-op membership card you can choose a local charity to support whenever you spend money on Co-op branded goods. If you live within 15 miles of Felinfoel, Llanelli you can choose to support WORLD. Thanks to […]

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14th June 2019
WORLD launch 26 Jun 18

Wales Orphan and Rare Lung Disease, or WORLD, celebrated its launch at Parc y Scarlets in Llanelli, on 26 June 2018, with special guest Phil Bennett. We hope that the charity will help inform and support patients with rare lung diseases together with their families, carers and friends and were delighted to have so many people join […]

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