Aims

DISCUSSION

To provide a forum for rare lung disease patients and their carers to meet and share experiences.

ENGAGEMENT

To raise awareness and engage health professionals to help improve diagnosis and management of rare lung disease.

KNOWLEDGE AND RESEARCH

Gathering information on patient numbers and outcomes and supporting research into rare lung disease.

SUPPORT

Offering emotional and educational support to rare lung disease patients, their families and carers including signposting to other relevant bodies.

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