Join us at the virtual All Wales Genomics Showcase on Friday 14th May 10am - 7pm. Keir Lewis will be speaking about COVID, and one of our members Marie James will be sharing her experience as a Rare Disease Advocate. We will also have trustees and members Sylvia and Graham Evans hosting a stand. You […]
A very big thank you to everyone at Arumba Llan Fitness Class and Charity for their generous donation of £2,500 to WORLD! Trustees Keir, Joe and Rachel were very pleased to receive this cheque on behalf of the charity, from Nia Gibbs and Teresa Owens, in a socially distanced presentation earlier this week. We are […]
WORLD Summer Quiz - Answers will be posted shortly, good luck.... 1. Who has won most grand slams in tennis; Serena Williams or Roger Federer? 2. In July what is the name given to the full moon? _ _ _ _ _ _ _ _ 3. At 1.34 miles, where is the longest pleasure pier in […]
As we can't get together in person to meet for the regular WORLD forum at the moment, we have decided to hold a virtual forum online for all our friends and supporters. This will take place at 10.30 am on Friday 4th of September and will be hosted on Microsoft Teams. If you would like […]
Please join us at Parc y Scarlets for our next event, our bi-annual patient and carer forum on Tuesday 10th March 2020. Our speakers include Joseph Carter from the British Lung Foundation and Dr Mark Briggs from the Welsh Blood Service. To register please email us at joinusatworld@outlook.com or visit us on Facebook www.facebook.com/WalesRare
WORLD is looking for volunteers to help plan and run fundraising events and activities for the charity. Whether you have the time to join the fundraising committee, have a great fundraising idea or can offer some time to help with an event, we would love to hear from you. Please email us at joinusatworld@outlook.com or message us via Facebook. […]
In April 2019, WORLD trustees Rachel (and bump), Sarah, Joe and Keir, took on a 26.2 mile challenge, promising to run, cycle or swim the distance of a marathon, to raise money for WORLD. The event culminated in Sarah running Hamburg marathon (all in one go!) on 28 April in a time of 4.34.24! Thanks to your […]
WORLD held a follow-up members event in January 2019, where we introduced our new trustees, Sylvia and Graham Evans and were delighted to receive a cheque donation of £1440 from Bethan Davies, raised in memory of her late sister Awen. Thanks to all speakers and attendees for their contributions and support in making the event a […]
WORLD is delighted to have the support of the Santander Foundation and in particular, we would like to thank Mr Leighton Phillips and Mr David Price at Santander Llanelli branch who applied via their staff-matched funding scheme for £1000 following our successful launch event, hosted by Mr Phil Bennett OBE at Parc y Scarlets last […]