Robert Salter from Respiratory Innovation Wales will be speaking at the WORLD AGM & Members' forum. WORLD's AGM and Members' Forum will be held on 14th March at Parc Y Scarlets, Llanelli. Come join us to meet other rare lung disease patients and their carers to share experiences and information. If you are unable to come along […]
Mr James Ingram from ScienApp will be talking about linking communities, carers and doctors, for people with Rare Diseases! WORLD's AGM and Members' Forum will be held on 14th March at Parc Y Scarlets, Llanelli. Come join us to meet other rare lung disease patients and their carers to share experiences and information. If you […]
Hello WORLD Supporter, Do you like curry? Do you like quizzes? If yes, we have the event for you! It's our Christmas curry and quiz night on Thursday 8th December from 7pm onwards at Sultan Fine Indian Dining in Llanelli. We have a £50 cash prize for the winning team, but will also have a raffle on […]
Hello everyone, We are having a Trustee meeting this Wednesday afternoon (10th August). If any members would like to bring anything to our attention, please post it on the Facebook/Twitter feeds or you contact us on through this website. We need to decide a way going forward. Sincerely Prof Keir Lewis, Chair
Our sincerest congratulations to Ray and Leslie for finally tying the knot (and he even got to watch the Arsenal game!) last Friday 5th. We hope you spend many happy years together and thank you for thinking of WORLD for your donations! Very best, your friends at WORLD
It is with great sadness that WORLD learned Phil Bennet died yesterday. As well as a true rugby legend, this kind man gave a lot to the people of Llanelli and supported numerous causes with grace and humility. Phil attended and entertained us at our inaugural WORLD meeting in Parc Y Scarlets in 2017. After […]
We would like to acknowledge the kind donations from the friends and family of Sheila Elaine Thomas, who was a true stalwart of the respiratory unit at Prince Philip Hospital. We would like to thank Amanda Thomas (Sheila's daughter) all the way from Canada, Mr and Mrs E. A. Evans, A. T. and J.E. Purdy, […]
Many congratulations to Sharon Geggus, one of our members who had severe COVID last November. Sharon has just swam 84 lengths of Llanelli Leisure pool (one for each day in hospital!) to raise money for a memorial sculpture. She has already raised £2,850 of her £3,000 target. Well done Sharon, WORLD are all very proud […]
Our Trustee Sylvia Evans has created this wonderful resource on holidays, days out and useful links to websites she recommends.
To register, please email us at joinusatworld@outlook.com
Join us at the virtual All Wales Genomics Showcase on Friday 14th May 10am - 7pm. Keir Lewis will be speaking about COVID, and one of our members Marie James will be sharing her experience as a Rare Disease Advocate. We will also have trustees and members Sylvia and Graham Evans hosting a stand. You […]
A very big thank you to everyone at Arumba Llan Fitness Class and Charity for their generous donation of £2,500 to WORLD! Trustees Keir, Joe and Rachel were very pleased to receive this cheque on behalf of the charity, from Nia Gibbs and Teresa Owens, in a socially distanced presentation earlier this week. We are […]
WORLD Summer Quiz - Answers will be posted shortly, good luck.... 1. Who has won most grand slams in tennis; Serena Williams or Roger Federer? 2. In July what is the name given to the full moon? _ _ _ _ _ _ _ _ 3. At 1.34 miles, where is the longest pleasure pier in […]
As we can't get together in person to meet for the regular WORLD forum at the moment, we have decided to hold a virtual forum online for all our friends and supporters. This will take place at 10.30 am on Friday 4th of September and will be hosted on Microsoft Teams. If you would like […]
Please join us at Parc y Scarlets for our next event, our bi-annual patient and carer forum on Tuesday 10th March 2020. Our speakers include Joseph Carter from the British Lung Foundation and Dr Mark Briggs from the Welsh Blood Service. To register please email us at joinusatworld@outlook.com or visit us on Facebook www.facebook.com/WalesRare
WORLD is looking for volunteers to help plan and run fundraising events and activities for the charity. Whether you have the time to join the fundraising committee, have a great fundraising idea or can offer some time to help with an event, we would love to hear from you. Please email us at joinusatworld@outlook.com or message us via Facebook. […]
In April 2019, WORLD trustees Rachel (and bump), Sarah, Joe and Keir, took on a 26.2 mile challenge, promising to run, cycle or swim the distance of a marathon, to raise money for WORLD. The event culminated in Sarah running Hamburg marathon (all in one go!) on 28 April in a time of 4.34.24! Thanks to your […]
WORLD held a follow-up members event in January 2019, where we introduced our new trustees, Sylvia and Graham Evans and were delighted to receive a cheque donation of £1440 from Bethan Davies, raised in memory of her late sister Awen. Thanks to all speakers and attendees for their contributions and support in making the event a […]
WORLD is delighted to have the support of the Santander Foundation and in particular, we would like to thank Mr Leighton Phillips and Mr David Price at Santander Llanelli branch who applied via their staff-matched funding scheme for £1000 following our successful launch event, hosted by Mr Phil Bennett OBE at Parc y Scarlets last […]
WORLD has been nominated and chosen to benefit from the Co-op's Local Community Fund. Did you know that if you have a Co-op membership card you can choose a local charity to support whenever you spend money on Co-op branded goods. If you live within 15 miles of Felinfoel, Llanelli you can choose to support WORLD. Thanks to […]
Wales Orphan and Rare Lung Disease, or WORLD, celebrated its launch at Parc y Scarlets in Llanelli, on 26 June 2018, with special guest Phil Bennett. We hope that the charity will help inform and support patients with rare lung diseases together with their families, carers and friends and were delighted to have so many people join […]